Aaron jordan with ataxia telangiectasia hopes to find out about ellen The 17 year old is one of just 1000 people world-Wide with ataxia telangiectasia, most likely a t, an incurable Air Jordan 10 degenerative disorder that has consigned him to a motorized wheel chair, rendering him struggles to walk, write, read or construct, and attacking his body's defense mechanisms. Aaron hopes to raise mindset for the disorder, described as being like a variety of cystic fibrosis, buff dystrophy, cerebral palsy, malignant tumors and leukaemia, by meeting ellen degeneres after she found its way to sydney today. The teen's true plea to the talkshow host, posted to zynga by his mother brenda and older sister chloe, moved viral, being shared and liked higher than 57, 600 times in the previous few weeks. "When we first arrange it and it went viral over that first three days we couldn't believe the responses we got, all the cater to and the well wishes we got, it was just disastrous, '' mum brenda described. "We just hope that ellen will see it and consider meeting him and sitting down and speaking with us so we can explain the disorder to her. "We should get someone who's got a lot of pull and a lot of know how to spread the awareness and to help with fundraising, and ellen actuality that.'' Queensland royal children's hospital specialist dr kate sinclair, who is head of the only clinic in the southern hemisphere for youngsters with a t, said the devastating disorder affected between 35 and 50 children in australia who jordan:http://www.skillya.net/ should not make it past their late teens. "Having a child who you think they will grow up to be normal and suddenly, at age two or three you're told their little bit of wobbliness means they have a life-Threatening condition, they're likely to get cancer, they're going to end up in a wheelchair at the age of eight and die very young, that's just absolutely huge, '' she pointed out. Dr sinclair said fundraising was much needed for research into a t, which has implications for other diseases shoes:http://www.skillya.net/ such as breast and cancer of the prostate. "This cellular based research we're doing is indeed helping other disorders, we are educating so much about cancer, hiv, getting old, we're learning so much using this one condition, '' she talked about. Ms jordan hopes degeneres are designed to help give a t the same profile here as it has in america, where celebrity showmanship couple ben affleck and jennifer garner jordans for sale are ambassadors for the disorder. While a family is yet to hear from the comedian or her producers they still have time to meet the talkshow host with degeneres tweeting that she was planning something special for her time in sydney: